Wednesday, 15 June 2016

Our ADOS results.

Last month I decided to share with you what we were going through with regards to S. It took me months and months to come up with courage whether to share or not, and to be honest since sharing things are getting better. So its only fair that I now update you again. It was such a relief that it was finally out in the open.

Last week was S's ADOS test. ADOS stands for Autism Diagnostic Observation schedule. It takes around two hours where she is tested through play. There is different tests depending how severe the child is. S is a walking talking social(most of the time) child so had a different test to which a child with mutism would. She didn't even know she was being tested.

They had a role playing session, which didn't go too well. S doesn't really do make believe as most children do. Her play resolves around everyday life and real scenarios and struggles with coming up with her own play. So this was an area to keep watching, but we can try to help with in the future.

They held a conversation with S about pets, she was fully engaged talking about our animals but when the lady spoke about hers, there was no interaction, no questions. This could be her age as she is only 4.5 years old but have been told again to watch how she develops in this particular area.  

Her eye contact is very poor. When talking to you she doesn't look at you. She will look at you for a second, then look away, then look again, then look away. When you call her name she will look at you but when eye contact is made she will look away again. She has improved since December though as she wouldn't even look at you then.

All the other areas she passed. They read a book with her about a zoo keeper and his animals letting other animals out the cages and whether the zoo keeper knew. She knew that the zoo keeper wouldn't know as it was done behind his back. Children that have autism wouldn't have that understanding as they believe what they see.

The test came out that she is NOT autistic. However she does have sensory needs, which is what I went to the drs regarding back when it all started. They stated she has proprioceptive issues. Finally I have something to work with.

After googling this after coming home, I nod my head... this is what S has... its something we can help with, now we have an understanding we can help others understand too... She is sensory seeking...

seeks out jumping, bumping, and crashing activities
kicks his/her feet on floor or chair while sitting at desk/table
loves to be tightly wrapped in many or weighted blankets, especially at bedtime
prefers clothes (and belts, hoods, shoelaces) to be as tight as possible or a dress to not feel it
loves/seeks out "squishing" activities
enjoys bear hugs
excessive banging on/with toys and objects
frequently falls on floor intentionally
would jump on a trampoline for hours on end
loves jumping off furniture or from high places
runs around and around until she is physically exhausted
makes strange sounds

We are lucky that she doesn't hurt other children through this sensory seeking and feel that the discipline very early on when she first started trying to hurt J has helped. She has found other ways of coping with this. She makes little cushion forts with the settee cushions which infuriated us to start with, but now we know why we can understand it and help build a cushion fort around her. She will run around and around until she is worn out, and at bedtime she will shriek her little head off to get that sensory unwind she needs.

She is a clever little cookie and everyone we have come across has said this, and their concern is that at school she could be too bored... WOW!! The school she will be going up to are aware and will be helping her so I am sure she will do well. She wants to be a zoo keeper as she is still fanatical about animals, and I fully believe she can and probably will.



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